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Sjogren’s Awareness – Understanding The Invisible Disease 

In an effort to spread the word to increase awareness about Sjogren’s Disease, eye care providers are speaking out about this hard-to-diagnose condition.

Sjogren’s is a systemic autoimmune disorder that can affect the whole body. One of the primary symptoms is excessive dryness particularly in the eyes and mouth. Other serious symptoms include chronic fatigue and pain, specifically in the joints, as well as major organ dysfunction. The syndrome also increases chances of neuropathies and lymphomas. 

The severity of the disease varies greatly, ranging from mild discomfort to debilitating symptoms that can seriously impair normal functioning in everyday life. Early diagnosis and treatment can prevent serious complications and improve quality of life. There is currently no cure for Sjogren’s, yet there are treatments for many of the individual symptoms. On average patients are prescribed upwards of 8 medications to treat the wide range of symptoms. 

Women are nine times more likely to develop Sjogren’s than men and diagnosis usually occurs around the age of 40. Unfortunately, because the symptoms vary from person to person, and the disease often occurs in the presence of or mimics other diseases (such as lupus, rheumatoid arthritis, menopause, allergies or multiple sclerosis) the disease is often misdiagnosed or overlooked. Further, because the symptoms can affect different parts of the body system such as the teeth, eyes or musculoskeletal system, various health professionals are sought to diagnose or treat specific symptoms (such as rheumatologists, dentists or eye doctors) while the big picture is often missed. On average it takes almost three years to obtain a Sjogren’s diagnosis once symptoms are noticed.  

Since dry eye is one of the most common early symptoms of the disease, there has been an effort to educate eye care providers to recognize and to be aware to look for symptoms of the disease. Patients also need to be aware and proactive about speaking to their health care providers about potential diagnosis and treatment. Knowing the risk factors and symptoms can be imperative to a faster diagnosis. 

Your eye doctor may be able to detect and diagnose Sjogren's syndrome from dry eye symptoms as well as other diagnostic tests and review of symptoms. With this diagnosis the treatment will be different from typical dry eye disease. Since it is an autoimmune disease, lubricating eye drops may provide temporary relief but will not address the source of the problem. Your doctor may prescribe newer cyclosporine drops as well to treat the inflammatory response. If you have dry eyes and typical treatments aren’t working, it may be worthwhile to ask about Sjogren’s. 

Sjogren’s patients often feel misunderstood because most of the debilitating symptoms are not visible to others and the disease is often not recognized largely due to a lack of awareness. By increasing both public and professional awareness, the goal is to reduce diagnosis time and to advance research on the cure for this disorder.

PROTECTING OUR COMMUNITY

We have been working very hard to prepare to re-open for normal "routine" preventive eye care, taking every precaution to ensure the safety of everyone involved. We are pleased to announce as of Monday May 18th we'll be seeing patients for all types of eye care, including routine annual eye exams.

But, things will be very different than they were prior to the pandemic.

1. Our front door will be locked at all times. We will be allowing only 1 person at a time in the office and by appointment only, so please enter alone, or with no more than l other person accompanying you. Others may wait in the car.

2. Masks will be required for both patients and us while in our office.

3. Upon entering, we will be checking your temperature and screen you for COVID symptoms or possible exposure. If your temperature is 100 F or higher, or you have symptoms or may have recently been exposed to COVID, we will reschedule you.

4. We will need you to respect the 6 feet personal distancing while outside the exam room

5. We will have you wash your hands for 20 seconds or use hand sanitizer when you enter. We will be using hand washing and hand sanitizer constantly and will be disinfecting everything you and we touch. Please don't touch anything that isn't absolutely necessary.

6. For frame selection or picking out glasses, please let us help you, and don't just browse and try on frames by yourself. We have to disinfect the frames every time they are touched or worn, and we need to know which frames need to be disinfected.

We are doing all these things to protect you and all of our other patients as best we can. We will need and depend on your cooperation on this during this very difficult time. Doing so will protect your fellow patients-many of whom are at extremely high risk if they contract COVID - and to protect us. All healthcare providers are putting themselves in harm's way every day during this pandemic - the more we all cooperate and take appropriate precautions, the better off we all will be.

We are all in this together. Thank you for your patience, understanding, and cooperation.

Please stay safe.

Dr. Jim Hutchins and staff